Alcuni link utili.
- Istituto Superiore di Sanità – http://www.iss.it/
- Ministero della salute – http://www.salute.gov.it
- Il portale delle malattie rare – http://www.orpha.net
- Rare Diseases Europe – http://www.eurordis.org
- Rare Best Practices – http://www.rarebestpractices.eu
- Internationale Rare Diseases Research Consortium – http://www.irdirc.org
- Public Health Europe – http://ec.europa.eu/health/index_en.htm
- Guidelines International Network – http://www.g-i-n.net
- Blog – Libro Bianco – https://associazioneirisonlus.wordpress.com